Come Play. Help Rori Run.

Rori was diagnosed with a rare but potentially life threatening auto immune disease in January of 2018 called Juvenile Dermatomyositis. Her disease affects her skin, muscles, joints and potentially organs if left untreated. She has been seeing an amazing rheumatologist since diagnosis and has been battling this disease since. She has been in and out of hospitals but had been doing better since March.

Recently, Rori just spent a week in the hospital getting high dose steroids because her disease is trying to flare back up. She has an appointment at the National Institute of Health in Maryland with the tops research doctors in her disease to try to stop it before it become worse.

With the travel, medical expenses and time that her parents have had to take off of work, they will need some help to make this trip. Proceeds from this event will be donated to them directly to bless this family.

Come Play. Help Rori Run.